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PUBLICATIONS
Please click on any of our featured publications for a description and downloading instructions:
  Breaking the Link Between Children's Special Health Care Needs and Financial Hardship
The Catalyst Center: Improving Financing of Care for Children and Youth with Special Health Care Needs, Health and Disability Working Group, Boston University School of Public Health (2009)
 
  Preparing for Practice: Addressing Special Health Care Needs in Pediatric Residency Programs
The Massachusetts Consortium for Children with Special Health Care Needs, a Program of New England SERVE, and the Massachusetts Chapter of the American Academy of Pediatrics Committee on Disabilities (2008)
  Structure & Spark! Building Family-Professional Partnerships to Improve Care for Children with Special Health Needs
The Family-Professional Partners Institute and the Massachusetts Consortium for Children with Special Health Care Needs, Programs of New England SERVE (2008)
  The Power of Partnership: Sixteen Family-Professional Partnerships That Are Making a Difference for Children with Special Health Care Needs
The Family-Professional Partners Institute and the Massachusetts Consortium for Children with Special Health Care Needs, Programs of New England SERVE (2008)
Making the Case for Coverage  

Making the Case for Coverage
Tips for Helping Children and Families Get the Benefits They Need from Their Health Plans: A Guide for Clinicians and Advocates
(2007)

Working Together
  Working Together:
The Family-Professional Partners Institute

Bringing Family Experience into Organizations that Shape Health Care for Children with Special Health Care Needs
(2006)

The Medical Home Partnership: Tips for Providers
Practical Tips for Physicians Caring for Children with Special Health Care Needs (2003; 2006 Edition Coming Soon)


The Medical Home Partnership: Tips for Families
Building a Home Base for Your Child with Special Health Care Needs (Second Edition, 2006)

  Shared Responsibilities Toolkit
Tools for Improving Quality of Care for Children with Special Health Care Needs (2002)
  Public Case Management & Care Coordination Programs for Children with Special Health Care Needs in the Commonwealth of Massachusetts (2000)

 

Paying the Bills
Tips for Families on Financing Health Care for Children with Special Needs (Second Edition, 1999)

Ensuring Access   Ensuring Access
Family-Centered Health Care Financing Systems for Children with Special Health Needs (1991)
  Enhancing Quality
Standards and Indicators of Quality Care for Children with Special Health Care Needs (1989)
 

Coordinating Care from Clinic to Community
Quality Standards for Serving Children and Families Affected by Environmental Lead Hazards (1998)

Building Quality   Building Quality
Indicators for Family-Centered Care in HIV Health Services for Children, Youth and Families (1994)
We regret that the following New England SERVE publications are no longer available for broad distribution:
Shared Responsibilities   Shared Responsibilities
Measuring Quality Managed Care for Children with Special Health Care Needs (1998) Please note that the Shared Responsibilities Toolkit is available, above.
Assessing Quality   Assessing the Quality of Managed Care for Children with Special Health Care Needs
Summary of a Regional Survey of Families, Primary Care Providers & Managed Care Organizations in New England (1997)
    Find more publications in the Resource Center of the Massachusetts Consortium for Children with Special Health Care Needs, a project of New England SERVE.