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Project SERVE Begins in Massachusetts
Its focus is a statewide needs assessment to determine the best role for Massachusetts' Maternal and Child Health (Title V) program serving children with special health care needs (CSHCN). The project’s findings are presented to families, providers, and state legislators in a public forum in 1986, becoming a platform for reform.


Project SERVE Takes On First Regional Effort, Renamed New England SERVE
The new focus is on increasing capacity for Title V programs and Departments of Public Health in all six New England states to promote family-centered care.  



Enhancing Quality Sets Standards
New England SERVE publishes Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs, defining critical characteristics and responsibilities of families, providers, health care agencies, state health departments and communities that contribute to high-quality family-centered care.

Regional Task Force Addresses Health Care Financing
New England SERVE and the six New England Title V agencies establish a task force to address the inadequacy of public and private health care financing systems for CSHCN and their families.



Ensuring Access Proposes Health Care Financing Measures
New England SERVE publishes Ensuring Access: Family-Centered Health Care Financing Systems for Children with Special Health Needs. It offers a set of criteria for judging existing public and private health care financing systems, along with proposals for reform, from the perspective of CSHCN.


New England SERVE Offers Technical Assistance
New England SERVE begins providing consultation services to help states, local communities, hospitals and clinical programs assess their capacity to care for CSHCN.

There’s New Help Paying the Bills
Working with parent leaders across the six New England states, New England SERVE publishes the first edition of Paying the Bills. The book provides tips for families for getting payment for children's health care services.


Symposium Addresses Health Care Financing for CSHCN
New England SERVE convenes an invitational symposium at the John F. Kennedy Library & Museum in Boston, bringing together New England health care providers, child and disability advocates, parents, health insurers, and state legislators to increase the visibility of children in the continuing debate on health care reform.


CHOP Chooses New England SERVE for Chronic Care Assessment
Clinicians and administrators at Children’s Hospital of Philadelphia (CHOP) select the standards outlined by New England SERVE in Enhancing Quality as the basis for evaluating their family-centered care for children with chronic illness. Working with physicians and families at CHOP, New England SERVE designs and implements an evaluation program in five specialty care divisions.
1993 C. Everett Koop Honored for Leadership
New England SERVE hosts a meeting at the Harvard School of Public Health honoring C. Everett Koop, MD, former U.S. Surgeon General, for his leadership and vision on behalf of children with special health care needs.
Building Quality for Families Affected by HIV
The National Pediatric HIV Resource Center and New England SERVE adapt Enhancing Quality for children and families affected by HIV. The result is Building Quality: Indicators for Family-Centered Care in HIV Health Services for Children, Youth and Families.
1995-1996 Survey Looks Into Quality Amid Rise of Managed Care
With increasing numbers of CSHCN enrolling in managed care plans, New England SERVE works with the six New England states to conduct a regional survey assessing the quality of care for CSHCN within these plans.
Assessing Quality of Managed Care for CSHCN
The results of that survey are published in Assessing the Quality of Managed Care for Children with Special Health Care Needs: Summary of a Regional Survey of Families, Primary Care Providers & Managed Care Organizations in New England.


New England SERVE Joins with Rhode Island to Strengthen Public Health Partnerships with Parents
New England SERVE is selected by the Rhode Island Department of Health, Division of Family Health, to design the Rhode Island Parent Consultant Program. Parent consultants are recruited, hired and trained to work as advisors to the full range of the state's Maternal & Child Health programs. Today, this project is administered by the Rhode Island Parent Information Network (RIPIN).

Coordinating Care for Families Affected by Lead
The Rhode Island Department of Health, St. Joseph Health Services of Rhode Island, and New England SERVE adapt Enhancing Quality for children and families affected by exposure to lead. The result is Coordinating Care from Clinic to Community: Quality Standards for Serving Children and Families Affected by Environmental Lead Hazards.


Regional Task Force Addresses Managed Care
Working with the six New England Departments of Public Health, families, health care providers and managed care organizations, New England SERVE develops Shared Responsibilities, a model for improving the quality of care for CSHCN enrolled in managed care plans.
Paying the Bills...Again
New England SERVE publishes the second edition of Paying the Bills.


Massachusetts Consortium for CSHCN Launched
Eleven colleagues working on research identifying CSHCN realize they are more effective when they share information and work in collaboration. With common interests and mutual, collegial support, they join together to improve systems of care, endorse the national 2010 goals for CSHCN, and create a mission statement. A new organization based on partnership and the power of collaboration is born, under the leadership of New England SERVE.


New Publication Examines Care Coordination
Public Case Management & Care Coordination Programs for Children with Special Health Care Needs in the Commonwealth of Massachusetts summarizes the results of a survey of state agencies offering case management or care coordination services to children with special health care needs. The report was prepared on behalf of the Massachusetts Consortium for Children with Special Health Care Needs under the auspices of New England SERVE.


Massachusetts Family Advisor Initiative
Expanding on the work of the Shared Responsibilities project, New England SERVE joins efforts with Family Voices to launch the Massachusetts Family Advisor Initiative. Parents of CSHCN are trained to conduct interviews with ten Massachusetts health plans about their policies and programs. Read their interview findings.


Regional Conference Promotes Medical Homes
New England SERVE hosts "Implementing Quality Medical Homes for CSHCN: Challenges, Opportunities, and Partnerships." This regional event brings together representatives from the six New England state Title V programs, the national American Academy of Pediatrics (AAP), the six state chapters of the AAP, state Community Access to Child Health (CATCH) facilitators and families for a multifaceted conversation about medical homes.

Unique Toolkit for Health Plans Developed
The Shared Responsibilities Toolkit is created to assist health plans build their capacity for high-quality, family-centered care for CSHCN. Sixteen customizable "tools" guide the processes of identifying CSHCN, creating collaboration and improving quality.


Project Educates Clinicians About Medical Home
The Massachusetts Department of Public Health contracts with New England SERVE to develop the Medical Home Network Project. This medical education program brings together primary care providers, parents and community partners for a series of three case-based discussions on caring for children with ongoing health conditions or disabilities. The goal of the curriculum is to increase the capacity of primary care physicians to care for CSHCN.

New Medical Home Partnership Guides Offer Valuable Advice
With the support of Children’s Hospital Boston and the Deborah Munroe Noonan Memorial Fund, New England SERVE publishes a pair of oversized brochures offering useful tips on creating and sustaining medical home partnerships. One is designed to address the needs of physicians, the other for families.
  "Concert for the Consortium" Celebrates the Healing Art of Music
The Longwood Symphony Orchestra, the orchestra of Boston's medical community, selects the Consortium and New England SERVE as beneficiaries of its December concert. The event raises over $20,000 to support the Consortium's work, and represents a significant endorsement from the healthcare community. The honor is repeated in 2005 and 2006.


  New England SERVE Partners with National Center for Health Care Financing
New England SERVE becomes a partner in the newly-established Catalyst Center: Improving Financing of Care for Children and Youth with Special Health Care Needs, a National Center based at the Boston University School of Public Health. New England SERVE's role has a special focus on dissemination of the Center's work.
Allen C. Crocker, MD
  Allen C. Crocker Fellowship Established
In celebration of his 50 years of leadership serving children with special needs and their families, New England SERVE honors one of its co-founders by creating the Allen C. Crocker Fellowship. Crocker Fellows in the fields of medicine, public health, law, education, social work, and family advocacy will bring his spirit, knowledge and values into their work for years to come.


Family-Professional Partners Institute

  Family-Professional Partners Institute Launched
The Family-Professional Partners Institute harnesses the valuable experience of family members caring for children with special health care needs, and channels it into a wide range of health care organizations where it has an impact on policy and programs. As a "partnership broker," the Institute recruits, trains and supports interested families and organizations, helping to place consumers in meaningful new roles that improve the care children and families receive.
  New Publication Illuminates Health Plan Coverage Decision-Making
Making the Case for Coverage: Tips for Helping Children and Families Get the Benefits They Need from Their Health Plans, is based on findings of a study conducted by New England SERVE and the Massachusetts Consortium for Children with Special Health Care Needs into the process nine MA health plans use for making coverage decisions. Collaboration among health plans, consumers, and other partners is key to the project's success.
  Partnership-Building Model Documented
To document its unique partnership brokering model, and to support the replication of that model by others, the Family-Professional Partners Institute releases Structure and Spark! Building Family-Professional Partnerships to Improve Care for Children with Special Health Needs. A second publication, The Power of Partnership, briefly describes the Institute's sixteen demonstrated partnerships.
  Pediatric Residency Study Completed
Working in collaboration with the Massachusetts Chapter of the American Academy of Pediatrics Committee on Disabilities, New England SERVE and the Massachusetts Consortium for Children with Special Health Care Needs complete interviews of the five pediatric residency training programs in the state. Findings are published as Preparing for Practice: Addressing Special Health Care Needs in Pediatric Residency Programs.



25th Anniversary Celebrated
New England SERVE celebrates 25 years of promoting quality systems of care for children with special health care needs and their families.