home
about
membershipwork groupsresource centerContact UsNew England Serve

 

WORK GROUPS & PROJECTS 1999-2009

 
 

CSHCN National Performance Objectives Project with the MA Department of Public Health
The Consortium worked with the state's Department of Public Health on priorities for systems improvement in Massachusetts for children with special health care needs and their families.

Summary

discussion among health care team  

Care Coordination Work Group
Many organizations in Massachusetts provide some level of care coordination for some segment of children with special health care needs. The Care Coordination Work Group took some important steps toward the ultimate goal of weaving this patchwork of services into a coherent and comprehensive system.

Reports and related resources.

 

Community-Based Systems of Care
Work Group
Families caring for children with special needs often require services from many different service systems: medical, educational, vocational, social, legal and so on. The Community-Based Systems of Care Work Group advocated a coordinated and integrated system of services that families can access easily.

Report, respite care information and related resources.


 

DME Access Project
Tracking Durable Medical Equipment from Recommendation to Delivery for CSHCN

What makes getting durable medical equipment (DME) such a complicated process for so many families? The Consortium's DME Access Project research
ed and reported on that question.

Project page, final report, and related resources.

parents with baby  

Family Participation Work Group
Families of children with special health care needs have a vital role to play in improving systems of care. The Family Participation Work Group promoted and supported that role, strengthening partnerships between family members and policymakers at all levels of public and private sector organizations.

Reports and related resources.

discussion among health plan decision-makers  

Medical Coverage Decision-Making
Work Group

How do health insurers define medical necessity? What criteria do they use to allow benefit exceptions or experimental procedures? The Medical Coverage Decision-Making Work Group’s goal was to improve understanding of how payers decide whether to cover medical services.

Reports and related resources.

mother, daughter and pediatrician

Medical Home Work Group
Children and their families who have a "medical home" receive care from a physician they know and trust. The Medical Home Work Group promoted the concept of medical home partnerships to families, primary care providers, health plans, and state agencies.

Reports and related resources.

 

Opening Doors for Children & Youth
with Disabilities and Special Health Care Needs

The Consortium partnered with Opening Doors, a research and training project on giving young people with special health care needs from underserved communities a better future.

Project description and resources.

 

Transition to Adulthood Task Force
For youth with special health care needs, turning 22 has been compared to "falling off a cliff," as services they have depended on are no longer available to them. This Task Force supportsed the goal that youth receive the services necessary to transition to all aspects of adult life, including adult health care, work and independence.

Reports and related resources.