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Background Brief

Medical Home Status of Children with Special Health Care Needs in Massachusetts
This report, prepared by the Consortium's Medical Home Work Group, presents an overview of medical ho
me status for children with special health care needs in Massachusetts. It describes a baseline of awareness, interest and resources for building a medical home capacity for CSHCN in the state. Read the entire brief or the Executive Summary.
July, 2002


Projects & Presentations  

Spreading Medical Home: Achieving and Measuring Success
Jeanne W. McAllister, RN, MS, MHA, co-founder of the Center for Medical Home Improvement, offers a national perspective on the development of community-based medical homes. This presentation examines what makes medical homes good -- or great -- at both the primary care and federal policy levels.
June 14, 2007

Rhode Island Pediatric Practice Enhancement Project (PPEP): Medical Home Enhancement Through Parent-Professional Partnership
Through this project, pediatric practices that serve a large percentage of CSHCN are provided with parent consultants, who help provide a comprehensive, coordinated medical home. Parent consultants link families with community resources, assist in accessing specialty services, and help identify and resolve systems barriers to coordinated care. The PPEP is a partnership of the RI Departments of Health and Human Services, and the RI Chapter of the American Academy of Pediatrics.
June 14, 2007

Medical Home Activities in Massachusetts: An Update
Medical Home Work Group Chair Beverly Nazarian, MD, presents an overview of current Medical Home initiatives across the state.
April 7, 2005

Compassionate Communication in the Medical Home: Lessons from Palliative Care
"Compassionate" care is one of the defining elements of the Medical Home. But what does it look like? Do we take it for granted? Can it be taught? Whit Garberson, MSW, former Chair of the Medical Home Work Group, explores compassion in the pediatric palliative care setting and applies it to the medical home.
April 7, 2005

Lessons Learned in Pediatric Palliative Care: Links to the Medical Home
David Browning, Director of the Initiative for Pediatric Palliative Care (IPPC), introduces us to a training program that teaches healthcare providers to improve communication and strengthen relationships with patients and families. FAQ's about IPPC.
April 7, 2005

Learning from Each Other: Examples of Compassionate Care
Compassionate care can be hard to define, but we know it when we experience it. By collecting anecdotal examples of compassionate care, the Consortium hopes to encourage the growth of compassion in medical homes and other healthcare settings.

Medical Home Network Project
This educational program of New England SERVE brings together primary care providers, parents and community partners to demystify the theory and practice of the Medical Home. Its case-based curriculum offers knowledge, awareness, and strategies for implementing small practice improvements.

The Medical Home Learning Collaborative
This presentation was given by Charlie Homer, MD, MPH, President and CEO of the National Initiative for Health Care Quality. It outlines a model of care for children in a medical home and methods of measuring quality.
December 2003

The 5-Minute Medical Home
DPH's new care coordination model aims to improve medical homes by placing increasing numbers of care coordinators in primary care settings, building alliances with providers, and bringing family concerns to the fore.
April 3, 2003


Preparing for Practice: Addressing Special Health Care Needs in Pediatric Residency Programs
The Massachusetts Consortium for Children with Special Health Care Needs, a Program of New England SERVE, and the Massachusetts Chapter of the American Academy of Pediatrics Committee on Disabilities (2008)
Preparing for Practice
describes a 2006-2007 study that looks at pediatric residency training in topics related to the care of children with special health needs.
Findings are presented along with corresponding topical requirements for residency training programs from the Accreditation Council for Graduate Medical Education (ACGME).

Joint Principles of the Patient-Centered Medical Home
The Patient-Centered Medical Home (PC-MH) is an approach to providing comprehensive primary care. It is a health care setting that facilitates partnerships between individual patients and their personal physicians and, when appropriate, the patient’s family. The AAP, AAFP, ACP, and AOA, representing approximately 333,000 physicians, have developed these joint principles to describe the characteristics of the PC-MH.
March, 2007

The future of primary care: home sweet (medical) home?
Holly Ramer, Associated Press Writer, Boston Globe,
May 14, 2006

"The frustration used to start on the phone. Every time Donna Dunlop called her daughter's pediatrician, she started from scratch, describing the girl's complex history of seizures and other neurological problems to someone in a remote office who had never heard of her..."

Explaining the Medical Home: Talking Points
Center for Medical Home Improvement, January 2006
A concise introduction to the "place, process and people" that comprise medical home.

The Medical Home Partnership
New England SERVE, Second Edition, 2006
This pair of oversize brochures � one directed at physicians, the other at families � explains the Medical Home concept and offers practical tips to make it work.

Pediatric Hospitals Teach Doctors Ways To Convey Tragic News
Laura Landro, Wall Street Journal, May 3, 2005
As part of a growing effort to improve care for seriously ill children around the country, hospitals and medical-residency programs are looking to enhance what they call "relational care" skills in medical professionals.

Family Reflections: A Thought-Provoking Guide to Getting Help for Children & Youth with Special Needs
Central Massachusetts Partnership, 2005
Designed to supplement traditional resource directories, Family Reflections presents family stories, extracts parents’ concerns and matches them with specific resources in the community. Also included are guidelines for well-visits and transition at every stage of growth.

Definition and Principles of Family-Centered Care,
including The Role of Cultural Competence in Family-Centered Care
Maternal and Child Health Bureau, Division of Services for Children with Special Health Care Needs, July 2005
This 2-page reference presents a definition of family-centered care that is based on more than 20 years of family and professional dialogue, and is designed to "guide and assist you to infuse professional practice, heighten family expectations, and withstand the test of time and changing environments."

To Show Our Humanness -- Relational and Communicative Competence in Pediatric Palliative Care
Bioethics Forum 18

The communication that occurs among children, parents and healthcare professionals must be grounded in caring and compassionate relationships. Author David Browning outlines the skills, knowledge, and attitudes these relationships require of practictioners. While the essay is informed by Browning's experience with end of life care, the lessons drawn from it are just as meaningful in the medical home context.

Directions: Resources for Your Child's Care
Massachusetts Department of Public Health, Second Edition, 2004
This manual is the result of a collaboration between the Massachusetts Department of Public Health and the Alliance for Health Care Improvement, and is designed to help families and providers improve communication and care. Read a descriptive flyer, see a presentation, download an order form, or download the manual from the DPH web site.

Well-Visit Guidelines
Massachusetts Medical Home Network, February 2003
This list of questions was developed to help pediatricians identify unmet needs of children and families, and community resources to address them. Physicians and families are encouraged to discuss these needs during pediatric well-visits.


Links National Center of Medical Home Initiatives for Children with Special Needs
The Center provides support to physicians, families, and other medical and non-medical providers who care for children with special needs so that they have access to a medical home. Resources include:

Center for Medical Home Improvement for CSHCN
The mission of the CMHI is to establish and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families. Find a Medical Home Improvement Kit, Medical Home Measurement tools and more.

Medical Home Activities for Children & Youth with Special Health Care Needs at Baystate Children's Hospital

Massachusetts Consortium for CSHCN Medical Home Work Group