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Background Briefs

Care Coordination in Massachusetts: Findings and Recommendations of a Three-Year Study (Introduction and Executive Summary)
This concise executive summary outlines the Consortium's report on the future of care coordination in our state.
June 2006

Care Coordination: Definition and Principles
The Consortium's Care Coordination Work Group incorporated findings from two years of research and policy review into this working definition of care coordination.
Revised, October 2005

To receive a packet of discussion materials about the Definition and Principles please e-mail your name and contact information to Kathy Ryan at [email protected]

Projects & Presentations  

Rhode Island Pediatric Practice Enhancement Project (PPEP): Medical Home Enhancement Through Parent-Professional Partnership
Through this project, pediatric practices that serve a large percentage of CSHCN are provided with parent consultants, who help provide a comprehensive, coordinated medical home. Parent consultants link families with community resources, assist in accessing specialty services, and help identify and resolve systems barriers to coordinated care. The PPEP is a partnership of the RI Departments of Health and Human Services, and the RI Chapter of the American Academy of Pediatrics.
June 14, 2007

Getting the Family Out from Under: Care Coordination in a Family-Centered System of Care
Deborah Allen and Kathleen Ryan's Powerpoint presentation provides context for the proposed statewide system of care coordination outlined in Care Coordination in Massachusetts: Findings and Recommendations of a Three-Year Study (Introduction and Executive Summary).
June, 2006

Achieving Change in Tough Times: Statewide, Comprehensive Care Coordination for CYSHCN in MA
This presentation by Deborah Allen and Kathy Ryan summarizes two years of research and policy review by the Care Coordination Work Group, and outlines recommendations and next steps.
June, 2005

Results of the National Study of Care Coordination Measurement in Medical Homes
A Care Coordination Measurement Tool (CCMT) was used to gather data in 20 primary care practices. This presentation by Richard C. Antonelli, MD and Donna M. Antonelli of the University of Massachusetts Medical School reveals the findings.
June 2004

Generalist-Specialist Communication as Part of Coordination of Care
This presentation by Christopher Stille, MD, MPH, offers a prescription for effective communication among the members of a child’s health care team.
February 2004

Coordinated Family-Focused Care (CFFC)
This presentation provides an overview of the CFFC program, launched in 2003 by the Massachusetts Behavioral Health Partnership for MassHealth clients. It is a collaboration of state public health agencies, the state Department of Education, and the Parent/Professional Advocacy League (PAL).
April 2003

The 5-Minute Medical Home
DPH's new care coordination model aims to improve medical homes by placing increasing numbers of care coordinators in primary care settings, building alliances with providers, and bringing family concerns to the fore.
April 3, 2003

Publications & Surveys

Moving Down the Pyramid: Supporting Care Coordination & Access
Issue Brief 06, Champions for Progress, March 2005

Summary of Interviews with Care Coordination Programs

The Consortium’s Care Coordination Work Group conducted a survey of 23 different organizations providing care coordination services to children with special health care needs and their families in October 2003. These different examples of care coordination have been clustered into five model types based on the locus of responsibility for the service.

Public Case Management & Care Coordination Programs for Children with Special Health Care Needs in the Commonwealth of Massachusetts: Results of a State Agency Survey (2000 - 15 pages), summarizes the results of a survey of Massachusetts state agencies offering case management or care coordination services to children with special health care needs. The survey was conducted during the winter of 1999-2000 on behalf of the Massachusetts Consortium for Children with Special Health Care Needs under the auspices of New England SERVE.

  Links   Care Coordination: Integrating Health and Related Systems of Care for Children With Special Health Care Needs
This policy statement from the American Academy of Pediatrics reviews the importance of the primary care pediatrician's role in care coordination in the context of the medical home.

Massachusetts Consortium for CSHCN Care Coordination Work Group